The following materials are produced by and available from the Down's Syndrome Association. We aim to make as much as possible available to be read and/or downloaded free from this website.

You can also contact the Down's Syndrome Association on Tel: or e-mail and ask for printed materials to be posted. There may be a small charge for this service.

Health

Highlighting issues that may prove particularly relevant to people with Down's syndrome and their carers as they get older

Up to date information, clarifying what carers need to know about detection, sporting activities etc. We suggest you also read the information pack from the British Gymnastics Association, below.

Guidance on screening for Atlanto-Axial Instability in people with Down's syndrome prior to taking part in gymnastics or other sports. Please note this is not a DSA publication. See also the DSA booklet above.

Some information and guidance on helping people with Down's syndrome cope with a bereavement.

A booklet for those who have had a pre-natal diagnosis of Down's syndrome and are continuing pregnancy. With personal stories from parents as well as information about the condition.

Help for the carers or families of a person with learning disabilities who may be depressed.

This booklet discusses the relationship between diabetes and Down's syndrome and provides information on day to day management. Also answers the most common questions parents and carers have.

Information about Alzheimer's disease and ideas for treatment and support

This book primarily for support staff working with people with Down's syndrome who have dementia. It is designed for use with a specific named person, to enable staff to offer them the most effective care possible as the person's condition progresses and their needs change...

This DVD is of Professor Tony Holland, talking about the effects of ageing on people with Down's syndrome. The video was recorded at the Down's Syndrome Association's AGM 2003.

Inclusion cases for children with Down's syndrome in the UK

Up to date information on the eye problems that can occur in children with Down's syndrome.

An introduction to the gastrointestinal problems that can sometimes occur in children with Down's syndrome.

Accssible health information for adults with Down's syndrome including a photocopiable personal health record. This material comes with a separate 'notes for carers' section. See below.

Contains information on glue ear, nerve deafness, grommets, hearing aids and testing hearing.

A report on a Down's Syndrome Association survey into attitutes to people with Down's syndrome amongst medical professionals

Answers to some of the questions most often asked about Down's syndrome

A guidance sheet for carers looking at preparing teenage girls with Down's syndrome for menstruation

This is a set of notes on medical issues to be used by the carers of adults with Down's syndrome. It complements Part 1 which is a Health Record to be used by the person with Down's syndrome.

Notes for carers on coping with sleep problems in children with Down's syndrome.

Up to date information on diagnosis and treatment

Summaries what doctors need to know for diagnosis and treatment

The Down's Syndrome Association is not able to supply the following books but you should be able to get copies from a good book shop or library.

Recommended Reading
Recommended Reading - Accessible
Recommended Reading - Health

An American title, which provides a holistic approach to the issues usrrounding adolescence in young people with Down's syndrome. Focuses on health, behaviour, self-esteem, education, employment and recreational activities.

This book will help readers promote the health and well being of individuals with Down syndrome. Contains a good mixture of clinical, social, and personal information. Contributions from many respected experts, including people with Down's syndrome

Collection of papers on health, education, psychological issues etc, for parents and professionals.

This book contains a collection of papers focussing on the advances in research and practice that make it possible for people with Down's syndrome to be fully included in society and have a better quality of life.

A comprehensive and up-to-date survey of current issues affecting people with Down's syndrome, including advocacy, medical, social and educational issues.

An accessible guide to understanding and developing fine motor skills in children with Down's syndrome.

Children with Down's syndrome master gross motor skills - everything from rolling over to running - but need additional help and encouragement to maximise development. This practical guide explains how.

A booklet for parents and carers who are supporting young people (aged 14 - 25) with learning disabilities. To order call the Foundation for People with Learning Disabilities on or visit their website www.learningdisabilities.org.uk

This book in the Need to Know series provides essential information in an honest and down to earth manner. The book looks at what it's like to have Down's syndrome and dispels some of the misconceptions about people with the syndrome.

Revised edition of this practical, comprehensive handbook. Particularly useful for those wanting a good introduction to the medical aspects of Down's syndrome.

Bob has been sexually abused by a male resident in a former home. (See entry for JENNY SPEAKS OUT) From Books Beyond Words.

(Addresses issues of death and cremation)- See entry for WHEN MUM DIED

(Addresses issues of death and burial) Colourfully illustrated with a brief text, these books are designed to help adults with learning disabilities prepare for or come to terms with, the death of a parent.

Clear and comprehensive information for families and carers on health issues for adults with Down's syndrome.

This book defines best practice in the asessment and provision for people with Down's syndrome who begin to experience dementia in their middle age.

Comprehensive guide on how to support and care for a person with Down's syndrome and dementia.

This guide covers medical conditions and treatments, from heart defects to skin conditions, that are more common among children with Down's syndrome.

Drawing on the authors' extensive experience from their clinic for adults with Down's syndrome, this book looks at promoting mental wellbeing, with chapters on specific issues such as self-esteem, flexibility, autism and mood disorders.

This book looks at all aspects of nutrition and healthy living for people with Down's syndrome from birth through to young adulthood. The author is a registered dietician and parent of a child with Down's syndrome.