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You may find these publications helpful. In many cases you can read the publications by downloading the appropriate PDF. Some items are also available for purchase online:
DSA Literature and Materials Recommended Reading
The following materials are produced by and available from the Down's Syndrome Association. We aim to make as much as possible available to be read and/or downloaded free from this website.
You can also contact the Down's Syndrome Association on Tel: or e-mail and ask for printed materials to be posted. There may be a small charge for this service.
General Information Information Sheets Medical and Health Information Reports Speech and Language Information Videos
PEOPLE WITH DOWN'S SYNDROME - YOUR QUESTIONS ANSWERED Author: Susannah Seyman Publisher: DSA, 1995 Price: £2.50Download PDF Answers to some of the questions most often asked about Down's syndrome
BEREAVEMENT Author: Stuart Mills Publisher: DSA, 2002 Price: £1.50Download Document Some information and guidance on helping people with Down's syndrome cope with a bereavement.
GASTROINTESTINAL PROBLEMS IN CHILDREN WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS Author: Dr Liz Marder Publisher: DSA, 1996 Price: £1.50 Download Document An introduction to the gastrointestinal problems that can sometimes occur in children with Down's syndrome.
PREPARATION FOR MENSTRUATION Author: Sarah Rutter & Mary Sawtell Publisher: DSA, 1995 Price: £1.50 Download Document A guidance sheet for carers looking at preparing teenage girls with Down's syndrome for menstruation
SLEEP PROBLEMS Author: Dr Rebecca Stone Publisher: DSA, 2001 Price: £1.50 Download Document Notes for carers on coping with sleep problems in children with Down's syndrome.
VITAMIN AND MINERAL SUPPLEMENTS Price: £0.00 Download Document Information on vitamin and mineral supplementation for children with Down's syndrome.
ACCESS TO EYECARE FOR ADULTS WITH LEARNING DIFFICULTIES Author: RNIB Publisher: RNIB, 2000 Price: £0.00 This is a leaflet encouraging carers to help adults with learning disabilities to get the eye care they need. It is not available on-line but the Down's Syndrome Association can supply copies on request.
AGEING AND ITS CONSEQUENCES FOR PEOPLE WITH DOWN'S SYNDROME Author: Prof. Tony Holland & Marie Benton Publisher: DSA, 2004 Price: £1.50 Download Document Highlighting issues that may prove particularly relevant to people with Down's syndrome and their carers as they get older
ATLANTO AXIAL INSTABILITY - NOTES FOR PARENTS AND OTHER CARERS Author: Dr Jennifer Dennis Publisher: DSA, 1995 Price: £1.50 Download PDF Up to date information, clarifying what carers need to know about detection, sporting activities etc.
DEPRESSION IN PEOPLE WITH A LEARNING DISABILITY Author: Royal College of Psychiatrists & DSA, 1996 Price: £0.00 Download PDF Help for the carers or families of a person with learning disabilities who may be depressed.
DIABETES AND DOWN'S SYNDROME - NOTES FOR PARENTS & CARERS Author: Peter Selby Publisher: DSA, 1997 Price: £1.50 Download PDF This booklet discusses the relationship between diabetes and Down's syndrome and provides information on day to day management. Also answers the most common questions parents and carers have.
DOWN'S SYNDROME AND ALZHEIMER'S DISEASE Author: Professor Tony Holland Publisher: DSA 2004 Price: £1.50 Download PDF Information about Alzheimer's disease and ideas for treatment and support
EYE PROBLEMS IN CHILDREN WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS Author: Barbara Crofts Publisher: DSA, 1997 Price: £1.50 Download PDF Up to date information on the eye problems that can occur in children with Down's syndrome.
HEALTH - LOOKING AFTER YOURSELF Publisher: DSA, 2002 Price: £2.50 Download PDF Accssible health information for adults with Down's syndrome including a photocopiable personal health record. This material comes with a separate 'notes for carers' section. See below.
HEARING PROBLEMS IN PEOPLE WITH DOWN'S SYNDROME - NOTES FOR PARENTS AND CARERS Author: Dr Jennifer Dennis Publisher: DSA 1995 Price: £1.50 Download PDF Contains information on glue ear, nerve deafness, grommets, hearing aids and testing hearing.
PROMOTING HEALTH IN PEOPLE WITH DOWN'S SYNDROME Author: DSA, 2002 Price: £2.50 Download PDF This is a set of notes on medical issues to be used by the carers of adults with Down's syndrome. It complements Part 1 which is a Health Record to be used by the person with Down's syndrome.
THYROID DISORDER AMONG PEOPLE WITH DOWN'S SYNDROME - NOTE FOR PARENTS AND CARERS Author: Dr Jennifer Dennis Publisher: DSA, 1995 Price: £1.50 Download PDF Up to date information on diagnosis and treatment
THYROID DISORDER AMONG PEOPLE WITH DOWN'S SYNDROME - NOTES FOR DOCTORS Author: Dr Jennifer Dennis Publisher: DSA, 1995 Price: £1.50 Download PDF Summaries what doctors need to know for diagnosis and treatment
BENEFITS LOTTERY Author: Christina Katic Publisher: DSA, 2001 Price: £0.00 A survey of member's experiences of claiming welfare benefits
EXPERIENCES OF INCLUSION FOR CHILDREN WITH DOWN'S SYNDROME IN THE UK Author: Stephanie Lorenz Publisher: DSA, 1998 Price: £5.00 Inclusion cases for children with Down's syndrome in the UK
HE'LL NEVER JOIN THE ARMY Author: Sarah Rutter & Susannah Seyman Publisher: DSA, 1999 Price: £5.00 A report on a Down's Syndrome Association survey into attitutes to people with Down's syndrome amongst medical professionals
DYSFLUENCY, STAMMERING, GETTING STUCK Author: Leela Baksi, Symbol UK Publisher: Down's Syndrome Association Price: £1.50Download Document This information is suitable for families, school staff and speech and language therapists. It includes practical activities and strategies to help with dysfluency and stammering as well as new makaton symbols for use in speech and language therapy.
DOWN'S SYNDROME AND THE CONSEQUENCES OF AGEING Author: Tony Holland Publisher: DSA, October 2003 Price: £10.00 This video is of Professor Tony Holland, talking about the effects of ageing on people with Down's syndrome. The video was recorded at the Down's Syndrome Association's AGM 2003.
The Down's Syndrome Association is not able to supply the following books but you should be able to get copies from a good book shop or library.
Recommended Reading Recommended Reading - Accessible Recommended Reading - Health
ADOLESCENTS WITH DOWN'S SYNDROME - TOWARDS A MORE FULFILLING LIFE Author: Siegfried Pueschel and Maria Sustrova (eds) Publisher: Paul H. Brookes 1997 An American title, which provides a holistic approach to the issues usrrounding adolescence in young people with Down's syndrome. Focuses on health, behaviour, self-esteem, education, employment and recreational activities.
ADULTS WITH DOWN SYNDROME Author: Siegfried M. Pueschel (editor) Publisher: Paul H. Brookes Publishing Co, 2006 This book will help readers promote the health and well being of individuals with Down syndrome. Contains a good mixture of clinical, social, and personal information. Contributions from many respected experts, including people with Down's syndrome
DOWN SYNDROME - A PROMISING FUTURE TOGETHER Author: Terry J. Hassold and David J. Patterson (eds) Publisher: Wiley-Liss 1999 Collection of papers on health, education, psychological issues etc, for parents and professionals.
DOWN SYNDROME - A REVIEW OF CURRENT KNOWLEDGE Author: Edited by Jean Rondal, Juan Perera and Lynn Nadel Publisher: Whurr Publishers 1999 This book contains a collection of papers focussing on the advances in research and practice that make it possible for people with Down's syndrome to be fully included in society and have a better quality of life.
DOWN SYNDROME: VISIONS FOR THE 21ST CENTURY Author: edited by William I. Cohen, Lynn Nadel and Myra E. Madnick Publisher: Wiley-Liss 2002 A comprehensive and up-to-date survey of current issues affecting people with Down's syndrome, including advocacy, medical, social and educational issues.
FINE MOTOR SKILLS IN CHILDREN WITH DOWN'S SYNDROME: A GUIDE FOR PARENTS AND PROFESSIONALS Author: Maryanne Bruni Price: £14.99 An accessible guide to understanding and developing fine motor skills in children with Down's syndrome.
GROSS MOTOR SKILLS IN CHILDREN WITH DOWN SYNDROME - a guide for parent and professionals Author: Patricia C. Winders Publisher: Woodbine House 1997 Children with Down's syndrome master gross motor skills - everything from rolling over to running - but need additional help and encouragement to maximise development. This practical guide explains how.
MEETING THE EMOTIONAL NEEDS OF YOUNG PEOPLE WITH LEARNING DISABILITIES Publisher: The Foundation for People with Learning Disabilities A booklet for parents and carers who are supporting young people (aged 14 - 25) with learning disabilities. To order call the Foundation for People with Learning Disabilities on or visit their website www.learningdisabilities.org.uk
NEED TO KNOW - DOWN'S SYNDROME Author: Kristina Routh Publisher: Harcourt Education 2005 This book in the Need to Know series provides essential information in an honest and down to earth manner. The book looks at what it's like to have Down's syndrome and dispels some of the misconceptions about people with the syndrome.
THE DOWN'S SYNDROME HANDBOOK: A PRACTICAL GUIDE FOR PARENTS AND CARERS Author: Dr Richard Newton Publisher: (Vermilion 1997) Price: £8.99 Revised edition of this practical, comprehensive handbook. Particularly useful for those wanting a good introduction to the medical aspects of Down's syndrome.
BOB TELLS ALL Price: £10.00 Bob has been sexually abused by a male resident in a former home. (See entry for JENNY SPEAKS OUT) From Books Beyond Words.
WHEN DAD DIED Price: £10.00 (Addresses issues of death and cremation)- See entry for WHEN MUM DIED
WHEN MUM DIED Author: Sheila Hollins and Lester Sireling Publisher: ( St George's Mental Health Library, 1989) Price: £10.00 (Addresses issues of death and burial) Colourfully illustrated with a brief text, these books are designed to help adults with learning disabilities prepare for or come to terms with, the death of a parent.
DOWN SYNDROME AND HEALTH CARE Author: Vee Prasher Clear and comprehensive information for families and carers on health issues for adults with Down's syndrome.
DOWN'S SYNDROME AND DEMENTIA - PRACTITIONER'S GUIDE Author: Diana Kerr Publisher: Venture Press 1997 This book defines best practice in the asessment and provision for people with Down's syndrome who begin to experience dementia in their middle age.
DOWN'S SYNDROME AND DEMENTIA RESOURCE PACK - for carers and support staff Author: Karen Dodd, Vicky Turk and Michhelle Christmas Publisher: BILD 2002 Comprehensive guide on how to support and care for a person with Down's syndrome and dementia.
MEDICAL AND SURGICAL CARE FOR CHILDREN WITH DOWN SYNDROME - a guide for parents Author: D.C. Van Dyke, Philip Mattheis and Susan Eberly Publisher: Woodbine House 1995 This guide covers medical conditions and treatments, from heart defects to skin conditions, that are more common among children with Down's syndrome.
Mental Wellness in Adults with Down syndrome - a guide to emotional and behavioral strengths and challenges Author: Dennis McGuire Ph.D. and Brian Chicoine M.D. Publisher: Woodbine House 2006 Drawing on the authors' extensive experience from their clinic for adults with Down's syndrome, this book looks at promoting mental wellbeing, with chapters on specific issues such as self-esteem, flexibility, autism and mood disorders.
THE DOWN SYNDROME NUTRITION HANDBOOK - A GUIDE TO PROMOTING HEALTHY LIFESTYLES Author: Joan Medlen Publisher: Woodbine House 2002 This book looks at all aspects of nutrition and healthy living for people with Down's syndrome from birth through to young adulthood. The author is a registered dietician and parent of a child with Down's syndrome.